Nerium EHT and Autism

imagejpeg_0As you all know, I have been researching the best ways to help our daughter Sarah. In the past I have worked on making products for her which includes the wonderful essential oils. Making the topical remedies has been really good for her as long as she could tolerate the smell and texture, which is not always an easy task.

I have always had Sarah on vitamins and when she was younger it was recommended by Dr. Bernard Rimland that she take a lot of vitamin b and magnesium. He also recommended Dimethylglycine (DMG). Through circumstances beyond our control we could only give her these supplements for a few years.

It has taken many years, but not to long ago our daughter MarciAnne recommended that maybe we should give Sarah EHT supplements. She said that this now 4 year old company called Nerium has worked with Princeton University and developed this EHT. Here is what EHT is:

WHAT IS EHT®?

The aging process can take a toll on brain function. Over time, vital neuronal connections weaken, which can cause memory loss, slower reaction times and diminished alertness. EHT® Age-Defying Supplement helps protect against mental decline with a groundbreaking formula that includes our exclusive, patented EHT®extract, a natural mixture of bioactive molecules isolated from coffee. For a full list of ingredients, click here. Fortified with other rejuvenating ingredients, including vitamins B6, B12, D3, magnesium citrate, selenium, Huperzine A (which increases focus) and the antioxidant lipoic acid, this supplement:

• Promotes better cognitive function and overall brain health
• Combats oxidative stress and chronic inflammation
• Fortifies and strengthens natural brain functions
• Protects and supports neuronal networking
• Enhances the body’s natural energy stores
• Boosts the body’s immune system
• Increases focus

I was very curious at this point and did a lot of research on EHT. I found out that many sports figures (especially in football) were being helped by EHT.

Below is a short video on how Nerium EHT helps the brain.

I will give further updates on how Sarah does with this exciting and revolutionary new supplement.

 

 

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Sarah’s Encounter – Good Samaritan The Army Medic

I want to write about something that happened last night. We went to meet Sarah at Kmart. They were closed so then we decided to go to Walmart, BIG mistake.

As everyone knows there are tell tale signs of when a person diagnosed with Autism is having a hard time and about to go into behaviors. Unfortunately last night we did not heed the signs.

As we were at the cashiers, Sarah had enough and went into a complete meltdown. We had tried so hard to get her out of the store before the meltdown but to no avail.2013-12-24 16.57.48

Most of the time when these things happen we get the usual dirty looks and snide comments.  As we were trying to get Sarah up off the floor and protect her a man by the name of Paul came up to us and offered to help. He stated that he was an Army Medic and knew how to deal with crisis situations.Army Medic 1Army Medic

Paul was able to help us reason with Sarah enough to get her into the electric cart that Walmart provides and get her out to the van. Thank you and God Bless You Paul. You went above and beyond. There are not very many people that have offered to help in situations like ours. I thank God that you (Paul) were there to help us last night.

Labeled Disabled Does Not Mean You Cannot Learn

My title is right. Just because a person is labeled disabled does not mean that they cannot learn. I cannot believe that there are still some people out there that are in stone age thinking.

Let me enlighten a few people out there with my rant. As you all no, my Sarah has been diagnosed with Autism and other disabled labels. Was it hard for her to learn? YES! Do you know why? Let me tell you, because some of her teachers did not teach her in the way that she could learn. They were to much by the book. It was not their fault, that is just how it was back in the 1990’s.2014-02-04 21.44.28

Did Sarah’s teachers inability to effectively teach her stop Sarah from learning? NO!!! Tell me how many people (that are labeled disabled) out there have 3 jobs to help support themselves to be as independent as possible and went to the State Capitol to fight to keep the right to have her jobs. My Sarah did!2015-02-24 13.29.00-22015-02-24 13.26.58-3

Sarah took the IQ test and it said hers was 61. She is verbal and very smart. The dr’s told us she not talk or probably not walk, she does both. She may not be a scholar in the traditional sense, but she can take a vacuum apart and put it back together again, without reading instructions and have it working better than it was before.

Sarah has learned to advocate as much as possible for herself and we do the rest for her.

I am writing this to encourage anyone out there that no matter what an IQ test says or anyone else for that matter, you are a blessing and you can learn. Don’t let your label in life define you or limit you.

 

Autism, Hypothyroidism and Adrenal Disease

It seems that there is a link between Autism and Hypothyroidism. If you are Autistic or not if you have any of the below symptoms of Hypothyroidism and/or Adrenal issues please get checked by your doctor.

Mine and Sarah’s experiences with Hypothyroidism are a lot the same. The only differences would be that her symptoms are much more heightened than mine.

2015-02-24 13.28.48

Do you have these symptoms?

  • Fatigue
  • Increased sensitivity to cold
  • Constipation
  • Dry skin
  • Unexplained weight gain
  • Puffy face
  • Hoarseness
  • Muscle weakness
  • Elevated blood cholesterol level
  • Muscle aches, tenderness and stiffness
  • Pain, stiffness or swelling in your joints
  • Heavier than normal or irregular menstrual periods
  • Thinning hair
  • Slowed heart rate
  • Depression
  • Impaired memory

If you do please go to your doctor and get checked for Hypothyroidism. While you are getting checked for Hypothyroidism have your doctor check your adrenal function.

I was diagnosed with Hypothyroidism when I was 17. When I was 45 my doctor checked my adrenal function to find out that I have a rare form of adrenal disease, which caused the Hypothyroidism.

Now if you are thinking that you may have adrenal fatigue (which is also linked to Hypothyroidism) please take a look at these symptoms.

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Do you have chronic fatigue?

Does your energy plummet half way through the day?

Do you struggle with insomnia?

Do bright lights bother you more than they should?

Do you startle easily due to noise?

When standing up from sitting or lying down, do you feel lightheaded or dizzy?

Do you struggle with chronic pain or fibromyalgia?

Do you have chronic headaches or migraines?

Do you have depression, anxiety, or mood swings?

Do you struggle with weight gain?

Do you have low sex drive?

Do you feel wired and tired?

If you answer yes to many of these, speak to your doctor about an adrenal function saliva test.

Please read this article from hypothyroidmom.com – http://hypothyroidmom.com/10-ways-to-overcome-fatigue-with-a-low-thyroid/

Hypothyroidism can have a profoundly deleterious effect on the developing brain, thus significantly contributing to the web of causes of autism.

This article from http://raphaelkellmanmd.com/specialties/the-thyroid-autism-connection/  talks about the connection of Autism and Hypothyroidism. Please read it.

We all no that Autism is very stressful on the body. We caregivers have our own stresses in trying to help our children with Autism which in turn effects our bodies. Just think of what a person with Autism body is going through with their stresses. I believe these stresses that are consistent have a direct effect on the Adrenal Glands.

Do your own research. I sure plan to.

 

 

 

 

Faith – Autism and Family Relationships

Family Picture

Family Picture

When you hear the diagnosis of Autism applied to your child, your whole world changes. At first you think that only your life has changed but that is not true. Your whole family dynamic changes and that includes the grandparents as well.

“It’s not what you thought your life would be like,” says Kathleen Patrick. Patrick is vice president of services for Easter Seals New Jersey. Her son, Adam Martin, 11, has an autism spectrum disorder known as pervasive developmental disorder — not otherwise specified (PDD-NOS). Her other son, Mark Martin, 9, is developing typically.

It’s not horrible, just different, Kingsley writes. She suggests that if you spend your life mourning the lost trip to Italy you will never enjoy the special qualities of Holland. After you’re there a bit, she says, you notice the charm –tulips, windmills, Rembrandts.

Whether the child with autism is the first-born, in the middle, or the baby, parents often worry about the effect that dealing with the autism — and the time commitment it involves — will have on the other children. “I think most parents bend over backward so it doesn’t affect the other children,” says McCarton.

In a recent study published in the Journal of Autism and Developmental Disorders,researchers compared siblings of autistic children with siblings of non-disabled children and found those with the autistic sibling were actually better adjusted psychosocially and emotionally. They did find, however, that it’s more difficult for the non-disabled child to cope with the autistic sibling if multiple risk factors such as low income are present.

Sarah's Sisters - Marci and Anna

Sarah’s Sisters – Marci and Anna

Exactly why the siblings of autistic children scored better isn’t known. Wright says they may have a higher level of maturity from observing and being involved in the care of a child with autism. “The message is,” Wright tells WebMD, “lots of siblings are doing OK.”

Marci visiting from out of state on Sarah's birthday.

Marci visiting from out of state on Sarah’s birthday.

Dealing with a diagnosis of autism puts a strain on any marriage. Men and women tend to react to the news differently, according to McCarton, and that can add to the stress.

“Women are profoundly sad. But they hit the ground running,” McCarton says, referring to the typical reaction women have on hearing the diagnosis. “They mobilize. Men often retreat into work.” Also, men often question the diagnosis or deny it.

This is what happened in our family. We had a lot to overcome.

The solution is to make time for each other, which is more easily said than done. Families are already time-strapped dealing with behavioral therapists, many doctor appointments, and above-average financial stress. Even so, experts say, couples have to feed the relationship — even if it’s watching a video together or talking after the kids are asleep.

It is kinda hard to find any time for each other but you must. Our Sarah only required 3 hours of sleep a night, so sleep for me was almost nonexistent. The only time Robert and I had anytime together in the early years was when respite or my mom would babysit. Most of the time it would be my mom, because the people at respite that would babysit would only do it once LOL.

It’s also crucial to steal solo time just for yourself, McCarton tells parents. She asks them: “What were the things you loved before?” When parents protest they have no time or money to indulge themselves, she says: “It doesn’t have to be expensive or take up hours of the day. It can be going to Starbucks and having a cup of coffee by yourself for half an hour. It can be taking a shower for 15 minutes.”

In our family the only alone time I had was when I was in the bathroom. I loved my showers and baths. They did not last long, but they were very much appreciated.

Many people deal with those challenges by opting out, according McCarton, which, she says, is a mistake. She says it’s important to think through what can be done to make the child with autism — who can become extremely upset by changes in routine that come with vacations — more comfortable on a trip.

We traveled a lot, always looking for a better place to live where all of our kids would get the best education and living atmosphere we could find. We were the family that seem to think the grass is always better on the other side. Sarah actually come to like the traveling and she learned to accept different types of people with know judgement. In other words she became a little more flexible.

With more awareness about autism and what it is, parents may expect friends and acquaintances to be accommodating to their autistic child’s needs. Maybe not, says Wright. “People are more aware, but I am not sure they know what to do or how to support” families dealing with it, she says.

Even with the awareness, people can stare when a child with autism displays what they consider odd behavior. “You get to the point where you get a thick skin,” Senator says. “You don’t care if people are staring at your kid.”

I personally never got to the point of having thick skin. I have however had a few confrontations and lost a few friends. My attitude was that if you didn’t accept my child you did not accept me. Maybe I did get a little thicker skin, but not much.

You learn, she says, to take control — even if you don’t feel so in control.

Letting go of that image of what the “ideal” family is can help

“Let yourself go with that and not worry about being a Hallmark card. Nat has taught me to be less uptight about those kinds of things. You can find enjoyment in odd places with these kids.”

Grandma (my Mom) and Sarah.

Grandma (my Mom) and Sarah.

Above all else always remember there is the God factor!

Spiritual life can be an important aspect of overall quality of life – for individuals with autism and the families who support them. Dealing with a disability does not reduce the need for a spiritual life. For some, in fact, the role of faith increases significantly when overwhelmed by the challenges a disability can bring to one’s life or family. A faith community is a cornerstone for spiritual support, and more critical support at a time of crisis. But these communities offer so much more than just support, as they are also a social network hosting activities and events for education, entertainment and relaxation. Additionally, a variety of ministries and volunteer options typically invite members to contribute their time and talents to give back to the community in a meaningful way. Families dealing with autism and developmental disabilities may struggle to feel welcome in these communities, accentuating the already existing feeling of isolation from the community at large. http://www.autism-society.org/living-with-autism/family-issues/autism-and-faith.html

 

 

DIY Smell Goods for Sarah

Ok I think everyone knows that I am on a quest to make some good smelling lotions for Sarah. She loves the cocoa butter smell.cocoa butter

 

She also loves the smell of vanilla and gingerbread. Sarah loves to smell good. The problem with lotions that she can afford to buy out of the store is that the ingredients in those lotions are not good for your body.vanillabeans-250x166

 

 

 

Sarah’s skin is almost translucent. She always has been pale in color.

 

 

 

Sarah has always had hypersensitive smell, sight and hearing. What ever I make her is going to have to be sensitive to her sensitive skin.gingerbread_man_ahero

 

 

 

I am getting some good advice from Tonya Hamilton creator of Createdtofly and my sister-in-law Che’ri Frare creator of Cherlyn Products.

 

 

 

I have written down some recipes an I am open to more recipes for DIY cocoa butter lotion or possibly vanilla and gingerbread. So if anyone else can help me, please do.

 

 

 

Sarah loves vanilla bean candles. I have never made any candles but I might tackle that later.

 

 

 

I so admire my daughter Sarah. Even though she was diagnosed with Autism, Tourette’s, Schizophrenia, Bi-polar, Partial Seizures ect…. It has never diminished the fact that, first she is Sarah a 24-year-old young lady who likes what every other 24-year-old young lady would.

 

 

 

Know matter what your child or family member is diagnosed with, remember that is what they may have at this time, but that is not who they are.

Have a Blessed Day 🙂

 

 

 

Homemade Lotion for Sarah

This gallery contains 3 photos.

Sarah has always been very sensitive to smell. Today she and her staff came over and we had a cook out. The visit went really well. Sarah is very curious, so when she went into our bathroom she wanted to … Continue reading

Essential Oils Break Through – Vanderbilt University Medical Center

I am a firm believer in the benefits of Essential Oils. I am so happy to find out that RN nurses Tonya McBride and Teresa Sturges who work at Vanderbilt University Medical Center are open-minded enough to recognize that Essential Oils in the work place really do make a difference.

“Through our own experiences of enlightenment, we now have a unique perspective for both traditional and alternative modalities.  We have witnessed a new era developing among physicians, nurses, and other healthcare practitioners who have a willingness to explore the therapeutic value of essential oils.”

Through the wellness committee, the use of essential oils was approved and defined within a research model to analyze the direct effects of diffusing essential oils in the hospital environment for the perceived outcome of stress reduction and increased energy levels.  Our staff was surveyed for 30 days pre and post implementation.  Before the use of essential oils 41% of the staff felt work related stress very often, after the use of essential oils only 3% felt work related stress very often.  The feelings of being overwhelmed changed from 25% very often before implementation to 2% after implementation.  Feelings of being well equipped to handle stressors at work changed from 13% very often before implementation to 58% after implementation.  Perceptions of staff optimal energy level increased from 33% to 77%.  Following the implementation of the essential oil initiative, 84% of the staff strongly agreed and 10% agreed that diffusing essential oils contributed to a more positive work environment.

You can read more of this great article at https://www.aromaticscience.com/essential-oils-opening-closed-minds/

I am very encouraged by this information and I feel very fortunate to be on the ground floor of getting the healthiest most natural ways out there to my readers who have a challenged family member.

If these nurses can make a difference in their work environment with their co workers using Essential Oils then it makes me wonder what impact they could potentially have on there patients at the hospital. Maybe doctors will now not be so closed-minded when we take our challenged family member in for a doctor visit and mention an alternative medicine instead of using a traditional medicine.

essential oils lavender, lemon and sweet orange

essential oils lavender, lemon and sweet orange (Photo credit: How to be Sustainable)

 

To Everyone Touched By Autism

To the parent who spend endless time at IEP meeting, therapies, classes, parent meetings and appointments, to the parent who stay up till the early hours in the morning reading to understand and aid your love one, to have to start the day in a short time, to the parent who spend sleepless nights in the hospital for countless reasons and still keep a smile on your face to keep your child at ease, to the parent who’s called at anytime of the day to get your child because they are having a meltdown, to the parent who has to see their loved one struggle to learn to eat, walk, drink, speak and potty train, to the parent who was never able to hold the child, touch the child, kiss the child until they fall into a deep enough sleep, to the parent who had to frantically look for their child in panic until the child was safe in her arms, to the parent who listen to the same sentences over and over even in her sleep, to the parent who had to explain a meltdown to anyone while at the same time keeping her child safe from others around her, to the parents who had to give in, not give up to keep the child from a meltdown as others around judge their parenting, to the parent who had to endure the pain of a bite, hair being ripped out or a kick without showing distress in their face no matter the pain, to the parent who cried endless nights for the reality of your child’s past, present and future, for the parent, friend and sister who had to deal with others problems and feel sympathy for others concerns when it was not an option for you, to that parent who sits in the back of a movie, party restaurants to have a path to exit at any time. We are super parents, one of a kind and as the list can go on and on we carry on with love in our hearts, the knowledge of a doctor and the wisdom of philosophers, the patience of a physiologist, the humor of a comedian and unconditional love of a child.
KUDOS to all who love someone with Autism!!! 

~ Viviana Sweeneyll

The above writings of Viviana Sweeney are so right on I had to share it. Below is a picture of our daughter Sarah when she was about 3 weeks old. One of my favorite pictures of her.Image